Patient Insights Board Member
Mindy Cameron has been embedded in the patient advocacy community for over 18 years as a parent of a young adult with Duchenne muscular dystrophy and as a professional advocating for those affected by rare disease. She has personally experienced the ups and downs of a rare disease diagnosis and has also picked up an abundance of knowledge from mentors and others along the way. As a professional working in rare disease advocacy, Mindy has led major fundraising and disease awareness campaigns, educated rare disease communities about clinical research and the importance of their participation, and helped government officials, regulators, and industry partners better understand the needs of those living with or affected by a rare disorder.
Mindy is a Board Director for the Muscular Dystrophy Family Foundation and serves on the Disability Advisory Committee for the City Council in her current home city of Carmel, Indiana.
Mindy works as an advisor and consultant for patient organizations, industry, and others in the rare disease space to ensure that the patient and caregiver perspective is included in all aspects of drug development, government decision making, and issues aimed at improving the quality of life for those affected by rare disease and mobility impairment.